{"id":41698,"date":"2023-12-05T00:39:58","date_gmt":"2023-12-04T23:39:58","guid":{"rendered":"http:\/\/www.infokuryr.cz\/n\/?p=41698"},"modified":"2023-12-04T15:38:39","modified_gmt":"2023-12-04T14:38:39","slug":"eu-rozhoduje-o-elektronicke-kartotece-pacientu-pro-kazdeho-namitka-vyloucena","status":"publish","type":"post","link":"https:\/\/www.infokuryr.cz\/n\/2023\/12\/05\/eu-rozhoduje-o-elektronicke-kartotece-pacientu-pro-kazdeho-namitka-vyloucena\/","title":{"rendered":"EU rozhoduje o elektronick\u00e9 kartot\u00e9ce pacient\u016f pro ka\u017ed\u00e9ho \u2013 n\u00e1mitka vylou\u010dena"},"content":{"rendered":"
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Dne 28. listopadu odhlasovaly vedouc\u00ed v\u00fdbory Evropsk\u00e9ho parlamentu vytvo\u0159en\u00ed \u201eEvropsk\u00e9 oblasti zdravotn\u00edch \u00fadaj\u016f\u201c (EHDS).<\/p>\n

To bude nyn\u00ed slou\u017eit ke shroma\u017e\u010fov\u00e1n\u00ed informac\u00ed o v\u0161ech l\u00e9ka\u0159sk\u00fdch o\u0161et\u0159en\u00edch pro ka\u017ed\u00e9ho ob\u010dana.<\/p>\n

Neexistuje zp\u016fsob, jak se z toho odhl\u00e1sit<\/strong><\/span><\/p>\n

Ned\u00e1vno p\u0159ijal Evropsk\u00fd parlament n\u00e1vrh usnesen\u00ed, jeho\u017e c\u00edlem je op\u011bt zbavit n\u00e1rodn\u00ed st\u00e1ty pravomoci ve prosp\u011bch\u00a0\u00a0centr\u00e1ln\u00edho superst\u00e1tu\u00a0<\/a>\u00a0.\u00a0V\u0161echny d\u016fle\u017eit\u00e9 kompetence, i ty, kter\u00e9 byly d\u0159\u00edve um\u00edst\u011bny na feder\u00e1ln\u00ed \u00farovni, maj\u00ed b\u00fdt p\u0159evedeny na \u201eevropskou exekutivu\u201c.<\/p>\n

Samoz\u0159ejm\u011b prim\u00e1rn\u011b v\u0161e, co se t\u00fdk\u00e1 zdravotnictv\u00ed.<\/p>\n

Elektronick\u00e9 spisy pacient\u016f jsou nyn\u00ed dostupn\u00e9 v mnoha zem\u00edch, jako je N\u011bmecko a Rakousko.\u00a0Jsou v\u0161ak navr\u017eeny tak, aby se ob\u010dan\u00e9 mohli odhl\u00e1sit a pot\u00e9 ji\u017e nebudou shroma\u017e\u010fov\u00e1na \u017e\u00e1dn\u00e1 data.\u00a0Z toho jsou ale vyjmuty \u00fadaje o o\u010dkov\u00e1n\u00ed, kter\u00e9 je samoz\u0159ejm\u011b povinn\u00e9.<\/p>\n

V tomto ohledu je od roku 2018 zaveden takzvan\u00fd \u201ecestovn\u00ed mapa spolupr\u00e1ce v oblasti nemoc\u00ed, kter\u00fdm lze p\u0159edch\u00e1zet o\u010dkov\u00e1n\u00edm\u201c.\u00a0Jak u\u017e se zodpov\u011bdn\u00ed ob\u010dan\u00e9 pravd\u011bpodobn\u011b dozv\u011bd\u011bli, toto prakticky neexistuje, alespo\u0148 ne bez v\u011bt\u0161\u00edho rizika pro ty, kte\u0159\u00ed se cht\u011bj\u00ed nechat o\u010dkovat.<\/p>\n

Vytvo\u0159en\u00ed EHDS jako \u00fast\u0159edn\u00edho c\u00edle EU<\/strong><\/span><\/p>\n

Krom\u011b lobov\u00e1n\u00ed za o\u010dkov\u00e1n\u00ed, \u201eboje proti dezinformac\u00edm o vakc\u00edn\u00e1ch na internetu a v\u00fdvoje informa\u010dn\u00edch n\u00e1stroj\u016f zalo\u017een\u00fdch na d\u016fkazech\u201c je \u00fast\u0159edn\u00edm z\u00e1jmem EU \u201eGrande\u201c tak\u00e9 vytvo\u0159en\u00ed \u201eEvropsk\u00e9ho prostoru zdravotn\u00edch dat (d\u00e1le jen \u201eEHDS\u201c). \u201c.<\/p>\n

D\u016fvody a c\u00edle tohoto n\u00e1vrhu jsou: \u201eEHDS vytvo\u0159\u00ed spole\u010dn\u00fd prostor, ve kter\u00e9m mohou fyzick\u00e9 osoby snadno kontrolovat sv\u00e9 elektronick\u00e9 zdravotn\u00ed \u00fadaje.\u00a0Krom\u011b toho budou moci akt\u00e9\u0159i z oblasti v\u00fdzkumu a inovac\u00ed, stejn\u011b jako politi\u010dt\u00ed \u010dinitel\u00e9, pou\u017e\u00edvat tato elektronick\u00e1 zdravotn\u00ed data d\u016fv\u011bryhodn\u00fdm a bezpe\u010dn\u00fdm zp\u016fsobem p\u0159i zachov\u00e1n\u00ed soukrom\u00ed.\u201c Nicm\u00e9n\u011b ochrana dat, kter\u00e1 byla p\u0159ed lety \u201ehystericky propagov\u00e1na\u201c, se ji\u017e nijak ne\u0159e\u0161\u00ed.<\/p>\n

Zde je op\u011bt text zbaven\u00fd pr\u00e1zdn\u00fdch fr\u00e1z\u00ed: \u201e… umo\u017e\u0148uje politick\u00fdm \u010dinitel\u016fm s rozhodovac\u00ed pravomoc\u00ed pou\u017e\u00edvat tato elektronick\u00e1 zdravotn\u00ed data.\u201c<\/p>\n

V\u00fdbor pro ob\u010dansk\u00e9 svobody, spravedlnost a vnit\u0159n\u00ed v\u011bci (LIBE) a V\u00fdbor pro \u017eivotn\u00ed prost\u0159ed\u00ed, ve\u0159ejn\u00e9 zdrav\u00ed a bezpe\u010dnost potravin (ENVI) nyn\u00ed projekt posunuly vp\u0159ed.<\/p>\n

Konec „l\u00e9ka\u0159sk\u00e9ho tajemstv\u00ed“<\/strong><\/span><\/p>\n

Konkr\u00e9tn\u011b by pr\u00e1vo EU m\u011blo l\u00e9ka\u0159\u016fm ukl\u00e1dat povinnost vkl\u00e1dat souhrn ka\u017ed\u00e9 l\u00e9\u010dby pacienta do nov\u00e9 m\u00edstnosti pro zdravotn\u00ed \u00fadaje (\u010dl\u00e1nek 7).\u00a0Neexistuj\u00ed \u017e\u00e1dn\u00e9 v\u00fdjimky nebo pr\u00e1vo vzn\u00e9st n\u00e1mitku pro zvl\u00e1\u0161t\u011b citliv\u00e9 nemoci a terapie, jako jsou du\u0161evn\u00ed poruchy, sexu\u00e1ln\u00ed nemoci a poruchy, jako je nedostatek potence nebo neplodnost, HIV nebo terapie z\u00e1vislosti.\u00a0Pacient by m\u011bl m\u00edt mo\u017enost vzn\u00e9st n\u00e1mitku proti p\u0159\u00edstupu jin\u00fdch poskytovatel\u016f zdravotn\u00ed p\u00e9\u010de ke sv\u00e9 elektronick\u00e9 dokumentaci pacienta, dokud nenastane nal\u00e9hav\u00e1 situace (\u010dl. 3 odst. 9).<\/strong><\/p>\n

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\u201ePl\u00e1novan\u00e9 povinn\u00e9 elektronick\u00e9 soubory pacient\u016f s celoevropsk\u00fdm p\u0159\u00edstupem v EU s sebou nesou nezodpov\u011bdn\u00e1 rizika kr\u00e1de\u017ee, hackingu nebo ztr\u00e1ty t\u011bch nejosobn\u011bj\u0161\u00edch \u00fadaj\u016f o l\u00e9\u010db\u011b a hroz\u00ed, \u017ee pacienty p\u0159iprav\u00ed o jakoukoli kontrolu nad shroma\u017e\u010fov\u00e1n\u00edm jejich nemoc\u00ed a poruch,\u201c kritizuje Dr.\u00a0Patrick Breyer, europoslanec z Pir\u00e1tsk\u00e9 strany a spoluvyjednava\u010d skupiny Zelen\u00fdch\/Evropsk\u00e9 svobodn\u00e9 aliance ve v\u00fdboru pro vnit\u0159n\u00ed z\u00e1le\u017eitosti Evropsk\u00e9ho parlamentu.<\/p>\n

„Nen\u00ed to nic jin\u00e9ho ne\u017e konec l\u00e9ka\u0159sk\u00e9ho tajemstv\u00ed.“\u00a0Nepou\u010dili jsme se nic z mezin\u00e1rodn\u00edch hackersk\u00fdch \u00fatok\u016f na nemocnice a dal\u0161\u00ed zdravotn\u00ed \u00fadaje?\u00a0Pokud jsou v\u0161echny du\u0161evn\u00ed choroby, l\u00e9\u010dba z\u00e1vislosti, ka\u017ed\u00e1 erektiln\u00ed dysfunkce a ka\u017ed\u00fd potrat n\u00e1siln\u011b propojeny, ustaran\u00ed pacienti riskuj\u00ed, \u017ee je odrad\u00ed od nal\u00e9hav\u00e9 l\u00e9ka\u0159sk\u00e9 p\u00e9\u010de \u2013 m\u016f\u017ee to zp\u016fsobit, \u017ee lid\u00e9 onemocn\u00ed a zat\u00ed\u017e\u00ed jejich rodiny!<\/p>\n

Dal\u0161\u00ed krok ke zbaven\u00ed moci ob\u010dan\u016f<\/strong><\/span><\/p>\n

N\u011bmecko se mus\u00ed kone\u010dn\u011b postavit na barik\u00e1dy proti t\u00e9to hroziv\u00e9 neschopnosti ob\u010dan\u016f a podkop\u00e1v\u00e1n\u00ed pl\u00e1novan\u00e9ho pr\u00e1va na n\u00e1mitku!\u00a0A v Evropsk\u00e9m parlamentu budu bojovat za to, aby moje skupina umo\u017enila cel\u00e9mu parlamentu rozhodnout o t\u00e9to hroz\u00edc\u00ed digit\u00e1ln\u00ed nezp\u016fsobilosti prost\u0159ednictv\u00edm pozm\u011b\u0148ovac\u00edho n\u00e1vrhu v prosinci.<\/p>\n

Ob\u010dan\u00e9 se v\u0161ak pravd\u011bpodobn\u011b v\u00edce zaj\u00edmaj\u00ed o to, co takzvan\u00e9 \u201eopr\u00e1vn\u011bn\u00e9 osoby\u201c d\u011blaj\u00ed s nejsoukrom\u011bj\u0161\u00edmi \u00fadaji, konkr\u00e9tn\u011b se zdravotn\u00edmi \u00fadaji v\u0161ech.<\/p>\n

Nemluv\u00edme jen o hackersk\u00fdch \u00fatoc\u00edch, ale tak\u00e9 o tzv. sekund\u00e1rn\u00edm pou\u017eit\u00ed.\u00a0To se t\u00fdk\u00e1 p\u0159\u00edstupu, kter\u00fd by m\u011bl b\u00fdt pro \u00fa\u010dely v\u00fdzkumu poskytnut v pln\u00e9m rozsahu.\u00a0\u00dadaje o pacientech by pak m\u011bly b\u00fdt p\u0159ed\u00e1ny t\u0159et\u00edm stran\u00e1m.\u00a0Z hlediska ochrany \u00fadaj\u016f je v\u0161ak centr\u00e1ln\u00ed shroma\u017e\u010fov\u00e1n\u00ed ji\u017e nyn\u00ed zna\u010dn\u011b problematick\u00e9, v p\u0159\u00edpad\u011b p\u0159ed\u00e1v\u00e1n\u00ed \u00fadaj\u016f by byl nal\u00e9hav\u011b nutn\u00fd alespo\u0148 postup opt-in (aktivn\u00ed souhlas).\u00a0To by umo\u017enilo ka\u017ed\u00e9 osob\u011b m\u00edt ur\u010ditou m\u00edru rozhodovac\u00ed pravomoci nad sv\u00fdmi osobn\u00edmi \u00fadaji.\u00a0Pokud v\u0161ak nen\u00ed zaveden postup opt-out (aktivn\u00ed n\u00e1mitka), znamen\u00e1 to v kone\u010dn\u00e9m d\u016fsledku zru\u0161en\u00ed d\u016fv\u011brnosti v\u0161ech l\u00e9ka\u0159sk\u00fdch informac\u00ed.<\/p>\n

A to i p\u0159esto, \u017ee na l\u00e9ka\u0159e v N\u011bmecku se pr\u00e1vem vztahuje profesn\u00ed ml\u010denlivost podle \u00a7 203 trestn\u00edho z\u00e1kon\u00edku.\u00a0Tato ochrana na\u0161ich nejsoukrom\u011bj\u0161\u00edch informac\u00ed a pr\u00e1vo na d\u016fv\u011brnou p\u00e9\u010di a rady jsou nyn\u00ed v s\u00e1zce na \u017e\u00e1dost EU.<\/p>\n

Jak dlouho z\u016fstane pr\u00e1vo vzn\u00e9st n\u00e1mitku v N\u011bmecku a Rakousku?<\/strong><\/span><\/p>\n

N\u00e1vrh z\u00e1kona n\u011bmeck\u00e9\u00a0spolkov\u00e9 vl\u00e1dy\u00a0<\/a>zd\u016fraz\u0148uje \u017ee \u201ev r\u00e1mci sv\u00e9 pacientsk\u00e9 suverenity a jako v\u00fdraz sv\u00e9ho pr\u00e1va na sebeur\u010den\u00ed mohou poji\u0161t\u011bnci svobodn\u011b odm\u00edtnout poskytnut\u00ed elektronick\u00e9 kartot\u00e9ky pacienta.\u201c V Rakousku se st\u00e1le m\u016f\u017eete odhl\u00e1sit na ELGA, krom\u011b \u010d\u00e1sti o o\u010dkov\u00e1n\u00ed.<\/p>\n

V sou\u010dasn\u00e9 dob\u011b v\u0161ak v Evropsk\u00e9m parlamentu neexistuje v\u011bt\u0161ina pro to, aby pacienti m\u011bli pr\u00e1vo vzn\u00e9st n\u00e1mitku.\u00a0<\/strong>Hlasov\u00e1n\u00ed na plen\u00e1rn\u00edm zased\u00e1n\u00ed je napl\u00e1nov\u00e1no na prosinec a m\u016f\u017ee prov\u00e9st kone\u010dn\u00e9 zm\u011bny.\u00a0Pokud se povinn\u00e1 ePA pozd\u011bji stane pr\u00e1vem EU, v\u0161echny \u010dlensk\u00e9 st\u00e1ty by musely zru\u0161it pr\u00e1vo vzn\u00e9st n\u00e1mitku.\u00a0Pr\u016fzkum\u00a0Evropsk\u00fdch spot\u0159ebitelsk\u00fdch center (BEUC<\/a>\u00a0) uk\u00e1zal, \u017ee 44 % ob\u010dan\u016f se ob\u00e1v\u00e1 odcizen\u00ed sv\u00fdch zdravotn\u00edch \u00fadaj\u016f a 40 % se ob\u00e1v\u00e1 neopr\u00e1vn\u011bn\u00e9ho p\u0159\u00edstupu k jejich \u00fadaj\u016fm.<\/p>\n

O tom by se mohlo rozhodnout ji\u017e 6. prosince v tzv. v\u00fdboru COREPER.\u00a0Pokud se povinn\u00e1 ePA stane pr\u00e1vem EU, v\u0161echny zem\u011b by ji musely bezpodm\u00edne\u010dn\u011b implementovat.<\/p>\n

S \u201edigit\u00e1ln\u00ed pen\u011b\u017eenkou\u201c EU, digit\u00e1ln\u00ed identitou EU a digit\u00e1ln\u00edmi pen\u011bzi centr\u00e1ln\u00ed banky tento sb\u011br v\u0161ech zdravotn\u00edch \u00fadaj\u016f ob\u010dan\u016f \u201ekone\u010dn\u011b\u201c umo\u017en\u00ed \u00fapln\u00fd dohled a kontrolu.<\/p>\n

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 <\/p>\n","protected":false},"excerpt":{"rendered":"

Dne 28. listopadu odhlasovaly vedouc\u00ed v\u00fdbory Evropsk\u00e9ho parlamentu vytvo\u0159en\u00ed \u201eEvropsk\u00e9 oblasti zdravotn\u00edch \u00fadaj\u016f\u201c (EHDS). To…<\/p>\n","protected":false},"author":2,"featured_media":11522,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[7],"tags":[2214,41,1975,48,6420],"_links":{"self":[{"href":"https:\/\/www.infokuryr.cz\/n\/wp-json\/wp\/v2\/posts\/41698"}],"collection":[{"href":"https:\/\/www.infokuryr.cz\/n\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.infokuryr.cz\/n\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.infokuryr.cz\/n\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.infokuryr.cz\/n\/wp-json\/wp\/v2\/comments?post=41698"}],"version-history":[{"count":1,"href":"https:\/\/www.infokuryr.cz\/n\/wp-json\/wp\/v2\/posts\/41698\/revisions"}],"predecessor-version":[{"id":41699,"href":"https:\/\/www.infokuryr.cz\/n\/wp-json\/wp\/v2\/posts\/41698\/revisions\/41699"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.infokuryr.cz\/n\/wp-json\/wp\/v2\/media\/11522"}],"wp:attachment":[{"href":"https:\/\/www.infokuryr.cz\/n\/wp-json\/wp\/v2\/media?parent=41698"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.infokuryr.cz\/n\/wp-json\/wp\/v2\/categories?post=41698"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.infokuryr.cz\/n\/wp-json\/wp\/v2\/tags?post=41698"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}